LVAD patient and doctor

About

The creation of this LVAD (Left Ventricular Assist Device) Decision Aid was funded through a generous award provided by the Patient Centered Outcomes Research Institute (PCORI).

 

This award has allowed us to speak to LVAD patients, caregivers, and clinicians in order to figure out what patients want to know when making decisions about LVAD therapy. In all, we completed over 80 patient, caregiver, and clinician interviews to inform the creation of this decision aid. 

 

To learn more about our methods during this process, please download the document below. We strive very hard to meet any and all decision aid standards set forth by IPDAS. 

 

 

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The Team 

Our LVAD Decision Aid was made through the collaboration of an interdiciplinary team and is funded through the generous support of The Patient Centered Outcomes Research Institute (PCORI). Feel free to learn more about us. 

Jennifer Blumenthal-Barby, PhD
Jennifer Blumenthal-Barby, PhD

Asso Professor Baylor College of Medicine

Kristin Kostick, PhD
Kristin Kostick, PhD

Research Assoc Baylor College of Medicine

Robert Volk, PhD
Robert Volk, PhD

Professor MD Anderson

Jerry D. Estep, MD
Jerry D. Estep, MD

Head of Section of Heart Failure and Transplantation, Cleveland Clinic

Charles Minard, PhD
Charles Minard, PhD

Asst Professor Baylor College of Medicine

Brenda
Brenda

PCORI LVAD Patient Partner

Mary
Mary

PCORI LVAD Patient Partner

Kenneth
Kenneth

PCORI LVAD Patient Partner

Matthias Loebe, MD, PhD
Matthias Loebe, MD, PhD

Surgical Dir Miami Transplant Inst

Mandeep Mehra, MD
Mandeep Mehra, MD

Dir, Heart and Vascular Center, Brigham and Women's

Douglas Horstmanshof, MD
Douglas Horstmanshof, MD

Dir of Heart Failure, INTEGRIS

Barry Trachtenberg, MD
Barry Trachtenberg, MD

Director, MCS Support Program, Houston Methodist

Andrew Civitello, MD
Andrew Civitello, MD

Director Heart Transplant Program, Baylor St. Luke's

Jonathan Grinstein, MD
Jonathan Grinstein, MD

Dir of MCS, UChicago

Nasir Sulemanjee, MD
Nasir Sulemanjee, MD

Adv Heart Failure, Aurora St. Luke's

Ulrich Jorde, MD
Ulrich Jorde, MD

Head of Heart Failure, Montefiore

Lauren Schoen
Lauren Schoen

Research Coordinator, Baylor College of Medicine

Jennifer Ng
Jennifer Ng

Research Assistant, Baylor College of Medicine

Former Team Members

  • Estevan Delgado, MA

  • Courtenay Bruce, JD, MA, CPHQ

  • Sheryl McCurdy, PhD

  • Lidija Wilhelms, BA

  • Holland Kaplan, MD

  • Mackenzie Nettlow

Contact Us

The Left Ventricular Assist Device Decision Aid Project is housed in the Center for Medical Ethics & Health Policy at Baylor College of Medicine.

 

Phone: 713-798-3785

 

VADDA PCORI Project

One Baylor Plaza, Suite 310D

Houston, Texas 77030

 

Contact jennifer.blumenthal-barby@bcm.edu or send us an email below.

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